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Hidden Suffering — Unemployed Voice Concerns About Transmission of Their Health Data to the Job Centre

Received: 13 January 2019    Accepted: 4 March 2019    Published: 28 March 2019
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Abstract

There are only few clinical studies that address the effects of unemployment on somatic health. Only under certain, particularly strict criteria, are unemployed adults to be included in studies as they are subjected to special attention by ethics committees given their status as "vulnerable subjects". Our original goal was to obtain data on the risk factor unemployment via a pseudonymized survey and a fitness test (spirometry or ergometry). A problem we faced was that majority of participants were very concerned about answering questions on their state of health. Even with a modified study design, an entirely anonymous survey, the concerns remained. Subsequent expert interviews showed that unemployed people, as patients, even have reservations when talking about their health to their doctors. They fear that the health data stored in the social insurance data set was accessible to the AMS. This behavior of avoidance could affect the health care of this demographic.

Published in European Journal of Preventive Medicine (Volume 7, Issue 1)
DOI 10.11648/j.ejpm.20190701.16
Page(s) 29-31
Creative Commons

This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited.

Copyright

Copyright © The Author(s), 2024. Published by Science Publishing Group

Keywords

Unemployment, Data Protection, Poverty, Ethic, Public Health, Good Clinical Practice

References
[1] Wanberg CR. The individual experience of unemployment. Annu Rev Psychol 2012; 63: 369–96.
[2] oeget. Österreichische Gesellschaft für EZA und Technologie. AMS- BO-Trainerbefragung 2015.
[3] Brown DW, Balluz LS, Ford ES, Giles WH, Strine TW, Moriarty DG, et al. Associations between short- and long-term unemployment and frequent mental distress among a national sample of men and women. J OccupEnvironMed 2003; 45(11): 1159–66.
[4] Robert E. Goodi. Protecting the vulnerable: A re Analysis of our social responsibility.(London, Chicago). The University of Chicago Press 1985; 110.
[5] Bradshaw CP, Rebok GW, Zablotsky B, Laflair LN, Mendelson T, Eaton WW. Models of stress and adapting to risk: a life course, developmental perspective. In: Eaton WW, editor. Public mental health. New York (NY): Oxford University Press; 2012. p. 269-302.
[6] C von Dewitz, FC Luft, C Pestalozza. Ethikkommissionen in der medizinischen Forschung. Gutachten im Auftrag der Bundesrepublik Deutschland für die Enquête-Kommission “Ethik und Recht der modernen Medizin” des Deutschen Bundestages, 2004.
[7] Erwin Deutsch, Andreas Spickhoff. Medizinrecht, Arztrecht, Arzneimittelrecht, Medizinproduktrecht und Transfusionsrecht. Springer-Verlag 2014; S. 921–2.
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  • APA Style

    Hummernbrum Sabine. (2019). Hidden Suffering — Unemployed Voice Concerns About Transmission of Their Health Data to the Job Centre. European Journal of Preventive Medicine, 7(1), 29-31. https://doi.org/10.11648/j.ejpm.20190701.16

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    ACS Style

    Hummernbrum Sabine. Hidden Suffering — Unemployed Voice Concerns About Transmission of Their Health Data to the Job Centre. Eur. J. Prev. Med. 2019, 7(1), 29-31. doi: 10.11648/j.ejpm.20190701.16

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    AMA Style

    Hummernbrum Sabine. Hidden Suffering — Unemployed Voice Concerns About Transmission of Their Health Data to the Job Centre. Eur J Prev Med. 2019;7(1):29-31. doi: 10.11648/j.ejpm.20190701.16

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  • @article{10.11648/j.ejpm.20190701.16,
      author = {Hummernbrum Sabine},
      title = {Hidden Suffering — Unemployed Voice Concerns About Transmission of Their Health Data to the Job Centre},
      journal = {European Journal of Preventive Medicine},
      volume = {7},
      number = {1},
      pages = {29-31},
      doi = {10.11648/j.ejpm.20190701.16},
      url = {https://doi.org/10.11648/j.ejpm.20190701.16},
      eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ejpm.20190701.16},
      abstract = {There are only few clinical studies that address the effects of unemployment on somatic health. Only under certain, particularly strict criteria, are unemployed adults to be included in studies as they are subjected to special attention by ethics committees given their status as "vulnerable subjects". Our original goal was to obtain data on the risk factor unemployment via a pseudonymized survey and a fitness test (spirometry or ergometry). A problem we faced was that majority of participants were very concerned about answering questions on their state of health. Even with a modified study design, an entirely anonymous survey, the concerns remained. Subsequent expert interviews showed that unemployed people, as patients, even have reservations when talking about their health to their doctors. They fear that the health data stored in the social insurance data set was accessible to the AMS. This behavior of avoidance could affect the health care of this demographic.},
     year = {2019}
    }
    

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Author Information
  • Department of Environmental Health, Medical University of Vienna, Vienna, Austria

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